Communicating rare diseases and disorders in the digital age...

Communicating rare diseases and disorders in the digital age

Series:

Advances in medical technologies and clinical practice book

Publisher:

Medical Information Science Reference

Pub. Date:

[2020]

Language:

English

CCU Owned eBook
Show Edition

CCU Electronic Resources

Pub. Date	Source	Publisher	Content Desc.	Availability
[2020]	CCU Owned	Medical Information Science Reference	1 online resource (xxiii, 412 pages) : illustrations (some color), charts.	Available Online CCU Electronic Resources	More Info Access Online

Description

This book is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. It features research on topics such as support networking, eHealth management, and social computing.

Subjects

Communication in medicine
Medical informatics
Social media in medicine

From the CCU Owned eBook

chapter 1. Talking about rare diseases : a compendium on rare diseases and online news / Sonia M. Rodrigues Oliveira, Hunter Medical Research Institute, Australia & University of Aveiro, Portugal

chapter 2. Health-related communication and rare diseases : a passport for the patient journey / Michaela Liuccio, Sapienza University Rome, Italy

chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases / Isabell Koinig, University of Klagenfurt, Austria, Sandra Diehl, University of Klagenfurt, Austria

chapter 4. Digital media in rare diseases or "knowledge is power" : the role of EURORDIS in creating awareness and diagnosing rare diseases / Célia Felicia Belim Rodrigues, Instituto Superior de Ciências Sociais e Politicas, Universidade de Lisboa, Portugal

chapter 5. Public media coverage of rare diseases and disorders : the case of Spanish Public Broadcasting Corporation / Yolanda Berdasco-Gancedo, Universidad a Distancia de Madrid, Spain

chapter 6. Representation of patients with rare diseases in Spanish media / Paloma López Villafranca, University of Málaga, Spain

chapter 7. Networks in rare diseases : identities, partnership, and advocacy in Brazil / Maria Angelica de Faria Domingues de Lima, Hospital Universitário Gaffrée e Guinle, Brazil, Ana Cristina B. Gilbert, independent researcher, Brazil, Dafne D.G. Horovitz, Instituto Fernandes Figueira, Brazil

chapter 8. Challenges of parents with children with rare diseases in Portugal : a relational perspective / Beatriz Moreira Silva Santos, University of Trás-Os-Montes and Alto Douro, Portugal, Cátia Filipa da Silva Ferreira, University of Trás-Os-Montes and Alto Douro, Portugal, Catarina Pinheiro Mota, University of Trás-Os-Montes and Alto Douro, Portugal & Center for Psychology, University of Porto, R. Alfredo Allen, Portugal

chapter 9. Neuropsychiatry in late onset tay-sachs disease : key features and possible etiology of psychosis / Natan Gadoth, Department of Neurology, Maynei Hayeshua MEdical Center, Bnei Barak and the Sackler Faculty of Medicine, Tel Aviv University, Israel

chapter 10. Portraying rare and misdiagnosed diseases in movies : a content analysis, 1980-2018 / Liliana Vale Costa, University of Aveiro, Portugal & DigiMedia, Portugal, Ana Isabel Veloso, University of Aveiro, Portugal & DigiMedia, Portugal

chapter 11. How is the administrator's experience in managing health Facebook groups? The impact of social media in patients with IBD / Claudia Pernencar, Nova Institute of Communication, Portugal, Inga Saboia, UFC Virtual, Brazil.

More Details

Contributors:

Oliveira, Sónia,1986-editor
Costa, Liliana Vale,editor
Gale (Firm)

ISBN:

9781799820895

Staff View

Grouping Information

Grouped Work ID	60635d5c-930a-df23-dc39-efae88e2515b
Grouping Title	communicating rare diseases and disorders in the digital age
Grouping Author	liliana vale costa
Grouping Category	book
Grouping Language	English (eng)
Last Grouping Update	2024-04-06 19:30:58PM
Last Indexed	2024-05-20 04:00:13AM

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Costa, Liliana Vale
Oliveira, Sónia, 1986-

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Costa, Liliana Vale,editor
Gale (Firm)
Oliveira, Sónia,1986-editor

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CCU Electronic Resources

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CCU Electronic Resources

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eBook

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9781799820895

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Colorado Christian University Online

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CCU Electronic Resources

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9781799820895

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2020

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Medical Information Science Reference

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grouped_work

series

Advances in medical technologies and clinical practice book

series_with_volume

Advances in medical technologies and clinical practice book|

subject_facet

Communication in medicine
Medical informatics
Social media in medicine

title_display

Communicating rare diseases and disorders in the digital age

title_full

Communicating rare diseases and disorders in the digital age / Liliana Vale Costa, University of Aveiro, Portugal, Sónia Oliveira, University of Aveiro, Portugal

title_short

Communicating rare diseases and disorders in the digital age

topic_facet

Communication in medicine
Medical informatics
Social media in medicine

Solr Details Tables

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