Communicating rare diseases and disorders in the digital age
(eBook)
Published:
Hershey, Pennsylvania : Medical Information Science Reference, [2020].
Format:
eBook
ISBN:
9781799820895
Content Description:
1 online resource (xxiii, 412 pages) : illustrations (some color), charts.
Status:
Available Online
Description
This book is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. It features research on topics such as support networking, eHealth management, and social computing.
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Citations
APA Citation (style guide)
Costa, L. V., & Oliveira, S. (2020). Communicating rare diseases and disorders in the digital age. Hershey, Pennsylvania, Medical Information Science Reference.
Chicago / Turabian - Author Date Citation (style guide)Costa, Liliana Vale and Sónia Oliveira. 2020. Communicating Rare Diseases and Disorders in the Digital Age. Hershey, Pennsylvania, Medical Information Science Reference.
Chicago / Turabian - Humanities Citation (style guide)Costa, Liliana Vale and Sónia Oliveira, Communicating Rare Diseases and Disorders in the Digital Age. Hershey, Pennsylvania, Medical Information Science Reference, 2020.
MLA Citation (style guide)Costa, Liliana Vale, and Sónia Oliveira. Communicating Rare Diseases and Disorders in the Digital Age. Hershey, Pennsylvania, Medical Information Science Reference, 2020.
Note! Citation formats are based on standards as of July 2022. Citations contain only title, author, edition, publisher, and year published. Citations should be used as a guideline and should be double checked for accuracy.
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Language:
English
Notes
Bibliography
Includes bibliographical references and index.
Description
This book is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. It features research on topics such as support networking, eHealth management, and social computing.
Staff View
Grouped Work ID:
60635d5c-930a-df23-dc39-efae88e2515b
Record Information
| Last Sierra Extract Time | Nov 16, 2024 05:40:12 AM |
|---|---|
| Last File Modification Time | Nov 16, 2024 05:40:39 AM |
| Last Grouped Work Modification Time | Nov 16, 2024 05:40:18 AM |
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| 245 | 0 | 0 | |a Communicating rare diseases and disorders in the digital age / |c Liliana Vale Costa, University of Aveiro, Portugal, Sónia Oliveira, University of Aveiro, Portugal. |
| 264 | 1 | |a Hershey, Pennsylvania : |b Medical Information Science Reference, |c [2020] | |
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| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | |a chapter 1. Talking about rare diseases : a compendium on rare diseases and online news / Sonia M. Rodrigues Oliveira, Hunter Medical Research Institute, Australia & University of Aveiro, Portugal -- chapter 2. Health-related communication and rare diseases : a passport for the patient journey / Michaela Liuccio, Sapienza University Rome, Italy -- chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases / Isabell Koinig, University of Klagenfurt, Austria, Sandra Diehl, University of Klagenfurt, Austria -- chapter 4. Digital media in rare diseases or "knowledge is power" : the role of EURORDIS in creating awareness and diagnosing rare diseases / Célia Felicia Belim Rodrigues, Instituto Superior de Ciências Sociais e Politicas, Universidade de Lisboa, Portugal -- chapter 5. Public media coverage of rare diseases and disorders : the case of Spanish Public Broadcasting Corporation / Yolanda Berdasco-Gancedo, Universidad a Distancia de Madrid, Spain -- chapter 6. Representation of patients with rare diseases in Spanish media / Paloma López Villafranca, University of Málaga, Spain -- chapter 7. Networks in rare diseases : identities, partnership, and advocacy in Brazil / Maria Angelica de Faria Domingues de Lima, Hospital Universitário Gaffrée e Guinle, Brazil, Ana Cristina B. Gilbert, independent researcher, Brazil, Dafne D.G. Horovitz, Instituto Fernandes Figueira, Brazil -- chapter 8. Challenges of parents with children with rare diseases in Portugal : a relational perspective / Beatriz Moreira Silva Santos, University of Trás-Os-Montes and Alto Douro, Portugal, Cátia Filipa da Silva Ferreira, University of Trás-Os-Montes and Alto Douro, Portugal, Catarina Pinheiro Mota, University of Trás-Os-Montes and Alto Douro, Portugal & Center for Psychology, University of Porto, R. Alfredo Allen, Portugal -- chapter 9. Neuropsychiatry in late onset tay-sachs disease : key features and possible etiology of psychosis / Natan Gadoth, Department of Neurology, Maynei Hayeshua MEdical Center, Bnei Barak and the Sackler Faculty of Medicine, Tel Aviv University, Israel -- chapter 10. Portraying rare and misdiagnosed diseases in movies : a content analysis, 1980-2018 / Liliana Vale Costa, University of Aveiro, Portugal & DigiMedia, Portugal, Ana Isabel Veloso, University of Aveiro, Portugal & DigiMedia, Portugal -- chapter 11. How is the administrator's experience in managing health Facebook groups? The impact of social media in patients with IBD / Claudia Pernencar, Nova Institute of Communication, Portugal, Inga Saboia, UFC Virtual, Brazil. | |
| 520 | |a This book is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. It features research on topics such as support networking, eHealth management, and social computing. | ||
| 588 | |a Description based on print version record. | ||
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| 650 | 0 | |a Medical informatics. |0 https://id.loc.gov/authorities/subjects/sh89005069 | |
| 700 | 1 | |a Costa, Liliana Vale, |0 https://id.loc.gov/authorities/names/n2019185904 |e editor. | |
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